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#BeyondSleepy

Welcome to the Hypersomnia Foundation, committed to improving the lives of people living with idiopathic hypersomnia (IH) and related sleep disorders.

Idiopathic hypersomnia (IH) is a chronic neurological sleep disorder.

People with IH crave sleep in the daytime, no matter how many hours they sleep at night. They struggle to wake, despite setting multiple alarms, and may have difficulty rising from bed (called sleep inertia). They may start the day feeling extremely groggy (sometimes referred to as sleep drunk), and can experience reduced focus and concentration during waking hours (called brain fog).

People with idiopathic hypersomnia often live without a correct diagnosis for a long time, blaming themselves and struggling to maintain work, studies and relationships. 

If you or a loved one has IH or a related sleep disorder, you’ll find understanding and up-to-date information here. (All medical info is reviewed by the sleep specialists and researchers on our Medical and Scientific Advisory Boards.) Explore our site to learn more about the science of sleep and the status of research, download guides for students, find clinical trials, consult the directory of physicians, join our patient registry, and much more.

In 2016 the Hypersomnia Foundation launched a patient registry. You may be able to help provide researchers with vital data!

Our Mission

To improve the lives of people with idiopathic hypersomnia and related disorders by advocating on their behalf, providing support, educating the public and healthcare professionals, raising awareness, and funding research into effective treatments, better diagnostic tools, and, ultimately, a cure for these debilitating conditions. The Hypersomnia Foundation is incorporated as a 501(c)(3) nonprofit.

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Raising Awareness

HF strives to increase community and physician awareness of idiopathic hypersomnia and related disorders.

Sharing Tools and Information

We provide education and resources for people with hypersomnia, their supporters, and healthcare providers.

Promoting Research

HF advocates for research into the causes and treatments of IH, in the quest for improved outcomes and quality of life for people with hypersomnia.

YOU Power the Engine for #BeyondSleepy

Medical Advisory Board (MAB) and Scientific Advisory Board (SAB) volunteers: The Hypersomnia Foundation’s Medical and Scientific Advisory Boards, otherwise known as the MAB and SAB, are comprised of world experts in their fields of sleep research and clinical work. The CoRDS registry questions were shaped...

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WEP Clinical – Expanded Access to Medications Not Yet Approved for General Prescription

Do you and your healthcare provider feel you might benefit from access to a medication that is not yet available/approved in your country or that is still in clinical trials? WEP Clinical* might be able to help you with this access. The Hypersomnia Foundation is...

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Welcome to the Hypersomnia Foundation Board, Betsy!

We are delighted to welcome Elizabeth (Betsy) Ashcraft to our Board of Directors. “Betsy has long been a supporter of the Hypersomnia Foundation, and we are excited to have someone with her talent and experience join the Board,” said Diane Powell, current HF Chair and CEO....

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Thank you for your interest in the Hypersomnia Foundation!