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#BeyondSleepy

Welcome to the Hypersomnia Foundation, committed to improving the lives of people living with idiopathic hypersomnia (IH) and related sleep disorders.

Idiopathic hypersomnia (IH) is a chronic neurological sleep disorder.

People with IH crave sleep in the daytime, no matter how many hours they sleep at night. They struggle to wake, despite setting multiple alarms, and may have difficulty rising from bed (called sleep inertia). They may start the day feeling extremely groggy (sometimes referred to as sleep drunk), and can experience reduced focus and concentration during waking hours (called brain fog).

People with idiopathic hypersomnia often live without a correct diagnosis for a long time, blaming themselves and struggling to maintain work, studies and relationships. 

If you or a loved one has IH or a related sleep disorder, you’ll find understanding and up-to-date information here. (All medical info is reviewed by the sleep specialists and researchers on our Medical and Scientific Advisory Boards.) Explore our site to learn more about the science of sleep and the status of research, download guides for students, find clinical trials, consult the directory of physicians, join our patient registry, and much more.

In 2016 the Hypersomnia Foundation launched a patient registry. You may be able to help provide researchers with vital data!

Our Mission

To improve the lives of people with idiopathic hypersomnia and related disorders by advocating on their behalf, providing support, educating the public and healthcare professionals, raising awareness, and funding research into effective treatments, better diagnostic tools, and, ultimately, a cure for these debilitating conditions. The Hypersomnia Foundation is incorporated as a 501(c)(3) nonprofit.

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Raising Awareness

HF strives to increase community and physician awareness of idiopathic hypersomnia and related disorders.

Sharing Tools and Information

We provide education and resources for people with hypersomnia, their supporters, and healthcare providers.

Promoting Research

HF advocates for research into the causes and treatments of IH, in the quest for improved outcomes and quality of life for people with hypersomnia.

Board Member Amy Haraden Speaks About Living with IH at SLEEP2 Conference

On June 3, 2017, Board Member Amy Haraden participated in a Patient Panel at the SLEEP2 (PCORI) Conference organized by Project Sleep. SLEEP2 is a project co-led by the University of Arizona, the Sleep Research Network, and Project Sleep and is funded by the Patient-Centered...

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Show Your Support!

The Hypersomnia Foundation has a lot going on right now, and there are many ways to show your support! Donate Our 2017 Fall Fundraiser is underway. With your donations, HF has been able to launch and maintain a patient registry to aid research; hold annual...

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Save the Date 2018 HF Conference

Save the dates for our 2018 Conference! June 2-3, 2018 in Baltimore, Maryland. #HFconf #BeyondSleepy

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You will receive an email from info@hypersomniafoundation.org (please check your junk/spam folder if needed) to confirm your subscription to our newsletter through MailChimp. You are not subscribed until you confirm. We recommend that you add info@hypersomniafoundation.org to your contacts and/or safe email list (whitelist) to ensure you receive all future newsletters. Thank you for your interest in the Hypersomnia Foundation!