Contact


Mailing Address

Donate

Your tax deductible gift in any amount helps support our efforts to advocate for more research, better treatments, and ultimately, a cure for IH.

Donate

Let's Get

#BeyondSleepy

Welcome to the Hypersomnia Foundation, committed to improving the lives of people living with idiopathic hypersomnia (IH) and related sleep disorders.

Idiopathic hypersomnia (IH) is a chronic neurological sleep disorder.

People with IH crave sleep in the daytime, no matter how many hours they sleep at night. They struggle to wake, despite setting multiple alarms, and may have difficulty rising from bed (called sleep inertia). They may start the day feeling extremely groggy (sometimes referred to as sleep drunk), and can experience reduced focus and concentration during waking hours (called brain fog).

People with idiopathic hypersomnia often live without a correct diagnosis for a long time, blaming themselves and struggling to maintain work, studies and relationships. 

If you or a loved one has IH or a related sleep disorder, you’ll find understanding and up-to-date information here. (All medical info is reviewed by the sleep specialists and researchers on our Medical and Scientific Advisory Boards.) Explore our site to learn more about the science of sleep and the status of research, download guides for students, find clinical trials, consult the directory of physicians, join our patient registry, and much more.

In 2016 the Hypersomnia Foundation launched a patient registry. You may be able to help provide researchers with vital data!

Our Mission

To improve the lives of people with idiopathic hypersomnia and related disorders by advocating on their behalf, providing support, educating the public and healthcare professionals, raising awareness, and funding research into effective treatments, better diagnostic tools, and, ultimately, a cure for these debilitating conditions. The Hypersomnia Foundation is incorporated as a 501(c)(3) nonprofit.

Donate

Raising Awareness

HF strives to increase community and physician awareness of idiopathic hypersomnia and related disorders.

Sharing Tools and Information

We provide education and resources for people with hypersomnia, their supporters, and healthcare providers.

Promoting Research

HF advocates for research into the causes and treatments of IH, in the quest for improved outcomes and quality of life for people with hypersomnia.

A Soothing Balm: Healing a Painful Experience

I want to add a postscript to my Personal Journey story that appeared in the July 2017 edition of the HF’s SomnusNooze. It relates to the traumatic experiences I had due to my idiopathic hypersomnia and being hospitalized. Because of the letter I wrote and...

Read More

The Hypersomnia Foundation at the World Sleep Congress in Prague

The Hypersomnia Foundation (HF) is thrilled to announce its attendance at the World Sleep Congress (WSC), hosted by the World Sleep Society, October 7 to 11, 2017 in Prague. The Congress is well attended by world clinical and scientific sleep medicine experts. Board members Diane...

Read More

Idiopathic Hypersomnia Standard Characteristics

It’s often a struggle to describe to others – sometimes to doctors – the essence of idiopathic hypersomnia. Now, the Hypersomnia Foundation presents Idiopathic Hypersomnia Standard Characteristics. This one-page document, reviewed and approved by our Medical Advisory Board, summarizes the common characteristics of IH. We...

Read More

Get “Somnusnooze”, HF’s monthly newsletter

Sign up to receive HF updates, news from the world of sleep research, first-person stories, and more.

Thank you for your interest in the Hypersomnia Foundation!